This is the website that helped me a lot on learning about my mother's condition. I just thought that I would post it in case anybody was curious or wanted to help support the MS Society.
http://www.nationalmssociety.org/
The National MS Society is a collective of passionate individuals who want to do something about MS now—to move together toward a world free of multiple sclerosis. MS stops people from moving. We exist to make sure it doesn't.
We help each person address the challenges of living with MS through our 50-state network of chapters. The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.
Showing posts with label MS. Show all posts
Showing posts with label MS. Show all posts
Friday, July 31, 2009
Tuesday, July 28, 2009
Greatest Mother!
Well, here goes my first blog post on here...
To start I have to say that I have the greatest mother on the planet! She has always made sure that I have had everything that I've ever needed and usually what I wanted. We have always been very close, I mean granted there was a time after I came out that she was more distant. Although, over the past 2 years we have gotten so much closer than maybe we have ever been in the past. She has really started taking an interest in my life again and even inquired about and invited my now ex-boyfriend to family functions (even buying gifts for him). Anyway, here goes the reason for my posting...
My mother has recently been diagnosed with MS. It has been so scary and wearing to think of my forever brilliant, beautiful, and independant mother being so weakened by this condition. She has apparently had it for a few years now but her doctors kept mis-diagnosing it. Passing it off as nothing more than migraines brought on by stress mixed with her TMJ and blood-sugar issues. (there were issues with the medication she was on for the migraines but thats for another day) Finally after she had been rushed to the hospital several times for stroke-like symptoms they sent her to a specialist in Nashville, TN. Once there she was diagnosed with MS. Since it had went so long she had developed lesions on her brain and lost a small portion of the strength on her left side. In order to repair this they put her on a weeks worth of daily IV treatments. These were supposed to last her until her appointment in August, but they have worn off and for the past several days she has once again been weak and tired. To the point where she has been having mild episodes again.
As of right now my mother and step-father are in a hotel in Nashville, TN waiting for her newly rescheduled appointment that is tomorrow morning at 10:30. Even once they get her leveled out with her treatment and everything she will still never be able to just be on some daily pill. They have informed her that she will need to be on daily in-home injections to keep it in check.
How is all this fair? Life sometimes kicks you so hard that you just find yourself wondering why? I realize that no matter how this affects me, its so much worse for my mother and I hurt for her everyday. She has always been the strongest person that I know, and now to think that she is so fragile and isn't the invincible wonder woman that I have always seen her as... Of course life doesn't throw just one curve ball at a time, so I see more posts very soon! Stay tuned...
To start I have to say that I have the greatest mother on the planet! She has always made sure that I have had everything that I've ever needed and usually what I wanted. We have always been very close, I mean granted there was a time after I came out that she was more distant. Although, over the past 2 years we have gotten so much closer than maybe we have ever been in the past. She has really started taking an interest in my life again and even inquired about and invited my now ex-boyfriend to family functions (even buying gifts for him). Anyway, here goes the reason for my posting...
My mother has recently been diagnosed with MS. It has been so scary and wearing to think of my forever brilliant, beautiful, and independant mother being so weakened by this condition. She has apparently had it for a few years now but her doctors kept mis-diagnosing it. Passing it off as nothing more than migraines brought on by stress mixed with her TMJ and blood-sugar issues. (there were issues with the medication she was on for the migraines but thats for another day) Finally after she had been rushed to the hospital several times for stroke-like symptoms they sent her to a specialist in Nashville, TN. Once there she was diagnosed with MS. Since it had went so long she had developed lesions on her brain and lost a small portion of the strength on her left side. In order to repair this they put her on a weeks worth of daily IV treatments. These were supposed to last her until her appointment in August, but they have worn off and for the past several days she has once again been weak and tired. To the point where she has been having mild episodes again.
As of right now my mother and step-father are in a hotel in Nashville, TN waiting for her newly rescheduled appointment that is tomorrow morning at 10:30. Even once they get her leveled out with her treatment and everything she will still never be able to just be on some daily pill. They have informed her that she will need to be on daily in-home injections to keep it in check.
How is all this fair? Life sometimes kicks you so hard that you just find yourself wondering why? I realize that no matter how this affects me, its so much worse for my mother and I hurt for her everyday. She has always been the strongest person that I know, and now to think that she is so fragile and isn't the invincible wonder woman that I have always seen her as... Of course life doesn't throw just one curve ball at a time, so I see more posts very soon! Stay tuned...
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